Lungs Behaving Badly is such a wonderful and inspirational blog. It is about “Enjoying life with Sophie (she is such cute little toddler) who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia.”Tracheo-oesophageal fistula (TOF) and oesophageal atresia (OA) are rare congenital conditions of the oesophagus (food pipe) and/or trachea (airway) that affect one in every 3,500 babies. Babies born with TOF/OA need to have intensive neonatal care prior to corrective surgery, normally within days of birth.
I asked the author of this blog to explain her blog and the reason why she started blogging in her own words:
I started my blog initially as a way to keep friends and family updated on my daughter Sophie's health.
Sophie was born with a tracheo-oesophageal fistula and oesophageal atresia and had to have lifesaving surgery 36 hours after she was born. Nothing has been plain sailing and she had numerous setbacks including being diagnosed with cystic fibrosis (cf).CF is a life shortening illness, it's progressive and currently there is no cure. The average life expectancy currently stands at 37 years of age. This
means that 50% of people will make it to that age, 50% won't.
I realized by writing my blog, I was able to spread awareness of her conditions and also gain a lot of support. The support has been a life saver and the amount of people who reach out to us is invaluable and I am so grateful to every one of them. My blog is my outlet at times and
I have met many great people through it.
I also hope my blog can help other families going through similar and show that despite the hard times, people with CF can lead a wonderful life. CF will never define who Sophie is.